Is the unrealistic expectation of getting cured related to poor treatment adherence among Indian Asthma patients? A hospital based mixed methods study from central India

J Family Med Prim Care. 2022 Jun;11(6):3178-3184. doi: 10.4103/jfmpc.jfmpc_1457_21. Epub 2022 Jun 30.

Abstract

Background: Prevention of premature deaths due to asthma requires continued disease control through efforts of both patients and healthcare providers. The expectations of patients have been shown to influence treatment adherence and disease control.

Methodology: We conducted a hospital-based sequential exploratory mixed methods study and used definitions of the Global Initiative for Prevention of Asthma (GINA). We recruited 80 asthma patients in a tertiary public health facility of central India. We assessed treatment expectations, health literacy, awareness, behavioural risk factors, self-care, treatment adherence, and disease control. We conducted a thematic analysis of qualitative data through manual inductive coding and used statistical software R version-3.6.1 for quantitative analysis.

Results: Sixty-seven (83.75%) patients expected that the current doctor would help them achieve 'cure', while 28 (35%) expected to obtain information about asthma. 81.2% and 77.5% of participants had inadequate health literacy and inadequate awareness, respectively. 73.8% were using inhalers and 21.2% were not using any treatment. Forced expiratory volume in 1 (FEV1) and Forced vital capacity (FVC) values were available for only 46.25%, while a meagre 6.25% were using peak-flow meter for self-monitoring. Though 21.2% reported optimal treatment adherence, 27.5% had good control. We found the expectation of cure and poor health literacy being significantly related to sub-optimal treatment adherence. We didn't find any association between the expectations of patients and their disease control.

Conclusion: Asthma patients in our setting mostly expected to get cured. The unrealistic expectation of 'cure' is related to poor treatment adherence and possibly poor disease control.

Keywords: Asthma; NVS; cross-sectional study; health literacy; primary care; treatment adherence; treatment expectations.