International models of neuropalliative care

Handb Clin Neurol. 2022:190:73-84. doi: 10.1016/B978-0-323-85029-2.00012-9.

Abstract

Can equitable Neuropalliative care (NpC) be delivered globally? This chapter surveys existing services and ground realities in different parts of the world. In many countries, universal healthcare (UHC) seems to have been a precondition for the establishment of palliative care (PC). PC has been recognized as a basic human right as a part of UHC. Quality of Death and PC surveys provide an overview of the existing situation. Currently, PC is largely focused on the needs of cancer patients and this is a legacy issue for professionals and systems. Communities however recognize suffering and do not distinguish between medical diagnoses. The development of NpC as a subspecialty of neurology allows neurologists everywhere to become primary palliative care providers for their own patients. It is also necessary to integrate neurology with existing palliative care services. There is much that can be done to improve NpC provision even within the limits that bound every jurisdiction and trial evidence is emerging to inform this practice. This chapter is a survey of the challenges and the potential.

Keywords: Disease trajectories; Neuropalliative care; Public health; Quality of Death; Universal healthcare.

Publication types

  • Review

MeSH terms

  • Humans
  • Neoplasms*
  • Neurologists
  • Neurology*
  • Palliative Care