Adaptive Stigma Coping Among Papuans Living with HIV: a Qualitative Study in One of the Indigenous People, Indonesia

J Racial Ethn Health Disparities. 2023 Oct;10(5):2244-2251. doi: 10.1007/s40615-022-01403-6. Epub 2022 Aug 30.

Abstract

Introduction: The indigenous Papuans of Indonesia's Tanah Papua Island have been a distinct cultural and racial entity from the rest of the country's inhabitants. Furthermore, antiretroviral therapy's inability to reduce mortality and incidence rates in this region has sparked public interest in HIV issues, which has resulted in increased stigma. Papuans were more interested in memorizing the symptoms than using antiretroviral as an effective therapy. This study aimed to analyze the coping level of HIV-infected Papuans to overcome related stigma.

Methods: A qualitative study was conducted with data collected through semi-structured interviews in 2018, and 13 Papuans who had experiences with antiretroviral therapy (ART) participated in audio-recorded interviews. The discussions were focused on the ways to deal with stigma after the HIV diagnosis. Furthermore, data were transcribed verbatim using the framework analysis for qualitative study.

Results: According to the study results, Papuans were shown to have effectively used self-distancing, self-blame, and self-stigmatization coping mechanisms, according to the results. The people temporarily utilize ART until their health returns to normal.

Conclusions: This study indicates that ART has been used to cope with stigma. However, the use was temporary since the misunderstanding regarding use of ART remains high. ART education should be addressed since Papuans are willing to adopt the method provided the benefits are fully comprehended. In addition, the participation of healthcare workers such as pharmacies should be increased since they can explain antiretroviral terms.

Keywords: Antiretroviral; HIV; Indigenous; Indonesia; Papua; Stigma.

MeSH terms

  • Adaptation, Psychological
  • Anti-Retroviral Agents / therapeutic use
  • HIV Infections*
  • Humans
  • Indigenous Peoples
  • Indonesia
  • Qualitative Research
  • Social Stigma

Substances

  • Anti-Retroviral Agents

Supplementary concepts

  • Papuan people