Demystifying Spina Bifida Guidelines Using a Periodicity Schedule

Top Spinal Cord Inj Rehabil. 2022 Summer;28(3):1-8. doi: 10.46292/sci21-00097. Epub 2022 Aug 17.

Abstract

Spina bifida is a congenital neural tube defect that affects the spine and spinal cord, as well as the brain in many cases, with life-long health-related consequences. In most cases, the term spina bifida refers to open myelomeningocele but includes a spectrum of dysraphic conditions. Early recognition and comprehensive care improve long-term health, well-being, and quality of life and decrease the use of emergency services and hospitalizations over the lifespan. Current evidence-based care guidelines are comprehensive, but they are not easily interpreted in busy primary care settings. The development of a periodicity schedule serves to simplify the current spina bifida guidelines into a document that is easy to use by all practitioners and families.

Keywords: comprehensive care; evidence-based care; periodicity schedule; primary care practitioner; spina bifida.

MeSH terms

  • Humans
  • Meningomyelocele*
  • Quality of Life
  • Spinal Cord Injuries*
  • Spinal Dysraphism* / therapy