Effectively Supporting Youth with Chronic Illness in Schools: External Partnerships and Training Recommendations

Brian P Daly; Shannon Litke; Jenna Kiely; Paul C Jones; Katelyn Wargel; Paul Flaspohler; Kathryn Mancini

doi:10.1016/j.pcl.2022.04.013

Effectively Supporting Youth with Chronic Illness in Schools: External Partnerships and Training Recommendations

Pediatr Clin North Am. 2022 Aug;69(4):695-707. doi: 10.1016/j.pcl.2022.04.013.

Authors

Brian P Daly¹, Shannon Litke², Jenna Kiely³, Paul C Jones⁴, Katelyn Wargel⁵, Paul Flaspohler⁵, Kathryn Mancini⁶

Affiliations

¹ Department of Psychological and Brain Sciences, Drexel University, 3141 Chestnut Street, Philadelphia, PA 19104, USA. Electronic address: bpd36@drexel.edu.
² Department of Psychological and Brain Sciences, Drexel University, 3141 Chestnut Street, Philadelphia, PA 19104, USA.
³ PolicyLab and the Center for Pediatric Clinical Effectiveness, Children's Hospital of Philadelphia (CHOP), 734 Schuylkill Avenue, Philadelphia, PA 19146, USA.
⁴ Temple University, 1301 Cecil B. Moore Avenue, Philadelphia, PA 19122, USA.
⁵ Miami University, 90 N Patterson Avenue, Oxford, OH 45056, USA.
⁶ MetroHealth Medical Center, Case Western Reserve University School of Medicine, 2500 MetroHealth Drive, Cleveland OH 44019, USA.

PMID: 35934494
DOI: 10.1016/j.pcl.2022.04.013

Abstract

Across Western countries, approximately 15% to 20% of school-aged children and adolescents have a health-related disorder, with incidence rates of childhood chronic health conditions (CHCs) increasing. This contribution comprehensively reviews disease-level, school-level, and systems-level issues related to effectively supporting children with CHCs succeed from both psychosocial and educational perspectives. This article also delineates training needs as they pertain to graduate preparation and/or professional development to equip school personnel to appropriately address students' needs. The article concludes with recommendations for evidence-based prevention and intervention strategies and potential avenues for interdisciplinary collaboration and models of coordinated care for these medically compromised youth.

Keywords: Academic functioning; Behavioral health; Childhood chronic health conditions; Interdisciplinary collaboration; School; School performance; School personnel; Socioemotional health.

Publication types

Review

MeSH terms

Adolescent
Child
Chronic Disease
Humans
Schools*
Students* / psychology