Reported Interest in Notification Regarding Use of Health Information and Biospecimens

Kayte Spector-Bagdady; Grace Trinidad; Sharon Kardia; Chris D Krenz; Paige Nong; Minakshi Raj; Jodyn E Platt

doi:10.1001/jama.2022.9740

Reported Interest in Notification Regarding Use of Health Information and Biospecimens

JAMA. 2022 Aug 2;328(5):474-476. doi: 10.1001/jama.2022.9740.

Authors

Kayte Spector-Bagdady¹, Grace Trinidad², Sharon Kardia³, Chris D Krenz⁴, Paige Nong³, Minakshi Raj⁵, Jodyn E Platt²

Affiliations

¹ Department of Obstetrics and Gynecology, University of Michigan Medical School, Ann Arbor.
² Department of Learning Health Sciences, University of Michigan Medical School, Ann Arbor.
³ School of Public Health, University of Michigan, Ann Arbor.
⁴ Center for Bioethics and Social Sciences in Medicine, University of Michigan Medical School, Ann Arbor.
⁵ Department of Kinesiology and Community Health, University of Illinois at Urbana-Champaign, Champaign.

Abstract

This study describes reported interest in notification regarding use of personal health information and biospecimens for research and preference-associated factors among a sample of the US population in 2019.

MeSH terms

Biomedical Research* / ethics
Biomedical Research* / standards
Confidentiality / standards
Disclosure / standards
Informed Consent* / standards
Medical Records* / standards
Patient Rights* / standards
Specimen Handling* / ethics
Specimen Handling* / standards
Surveys and Questionnaires

Abstract

MeSH terms

Grants and funding