Strategies to Engage Systematically Marginalized Youth and Their Families in Research Using High-Tech Methods

ANS Adv Nurs Sci. 2022 Apr 29:10.1097/ANS.0000000000000421. doi: 10.1097/ANS.0000000000000421. Online ahead of print.

Abstract

The purpose of this study was to identify facilitators and barriers for engaging youth and families from a historically and systematically marginalized community in high-tech research. Adapting community-based participatory research principles, 4 focus groups were conducted with 13 youth and 12 parents. Using codebook thematic analysis, 5 facilitator themes (develop skills, ensure health, build understanding, promote safety, and help others, youth-initiated interest) and 4 barrier themes (anxiety and fear, skepticism, confusion, and unfamiliar/unknown experience) were identified. Youth and parent responses informed proposed guidelines for recruiting and engaging families in research using high-tech methods, particularly those from historically and systematically marginalized communities.