The spectrum of attitudes towards the spectrum of autism and its relationship to psychological distress in mothers of children with autism

Autism. 2023 Jan;27(1):54-64. doi: 10.1177/13623613221081185. Epub 2022 Mar 16.

Abstract

Mothers of children on the autism spectrum experience high levels of emotional distress. Mothers cope with stress by having their own thoughts and opinions about their children. In this study, we tested whether the way mothers perceive autism may contribute to the level of distress they feel. Some mothers see autism as a developmental disorder that needs to be cured, but some see autism as a type of mind that needs to be accepted. Our findings showed that mothers who see autism more as a type of mind are generally less stressed. But we also showed that it matters how severe are the child's symptoms, and how heavy was the perceived burden of caring for the child. These results imply that it is worth working on attitudes towards autism to help mothers cope better. But at the same time, we argue that mothers should not be judged for their perceptions of autism, as there is a huge spectrum of a child's characteristics and family's life circumstances.

Keywords: attitude towards autism; autism spectrum conditions; mothers of children with autism; psychological distress; resilience.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Autism Spectrum Disorder* / psychology
  • Autistic Disorder*
  • Child
  • Female
  • Humans
  • Mothers / psychology
  • Psychological Distress*
  • Stress, Psychological / psychology