Improvements and advances in core outcome set methodology: proceedings of the CS-COUSIN & COMFA Joint Meeting

McKenzie A Dirr; Murad Alam; Christian Apfelbacher; Karl-Philipp Drewitz; Bianca Y Kang; Daniel Munblit; Nikita Nekliudov; Nina Seylanova

doi:10.1007/s00403-022-02341-3

Improvements and advances in core outcome set methodology: proceedings of the CS-COUSIN & COMFA Joint Meeting

Arch Dermatol Res. 2023 Jul;315(5):1375-1379. doi: 10.1007/s00403-022-02341-3. Epub 2022 Mar 4.

Authors

McKenzie A Dirr¹, Murad Alam^{2

3

4}, Christian Apfelbacher⁵, Karl-Philipp Drewitz⁶, Bianca Y Kang¹, Daniel Munblit^{7

8

9}, Nikita Nekliudov⁷, Nina Seylanova¹⁰

Affiliations

¹ Department of Dermatology, Feinberg School of Medicine, Northwestern University, 676 N St. Clair Street, Suite 1600, Chicago, IL, 60611, USA.
² Department of Dermatology, Feinberg School of Medicine, Northwestern University, 676 N St. Clair Street, Suite 1600, Chicago, IL, 60611, USA. m-alam@northwestern.edu.
³ Department of Otolaryngology- Head and Neck Surgery, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA. m-alam@northwestern.edu.
⁴ Department of Surgery, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA. m-alam@northwestern.edu.
⁵ Medical Faculty, Otto-Von-Guericke-University Magdeburg, Leipziger Str. 44, Magdeburg, 39120, Germany.
⁶ Institute of Social Medicine and Health Systems Research, University of Magdeburg, Magdeburg, Germany.
⁷ Department of Paediatrics and Paediatric Infectious Diseases, Institute of Child's Health, Sechenov First Moscow State Medical University (Sechenov University), Moscow, Russia.
⁸ Inflammation, Repair and Development Section, National Heart and Lung Institute, Faculty of Medicine, Imperial College London, London, UK.
⁹ Research and Clinical Center for Neuropsychiatry, Moscow, Russia.
¹⁰ Sechenov Biomedical Science and Technology Park, Sechenov First Moscow State Medical University (Sechenov University), Moscow, Russian Federation.

Abstract

A COS is a systematically developed list of outcomes recommended for reporting all studies within a particular disease area. The Cochrane Skin-Core Outcome Set Initiative (CS-COUSIN) and the Core Outcome Measures in Food Allergy (COMFA) Initiative Joint Meeting was held virtually on September 23 through 28, 2021. This meeting brought together core outcome set (COS) developers within the domains of dermatology and food allergy, respectively. The meeting assessed the state of COS methodology, provided a forward look, and facilitated the networking of members of individual COS groups. The meeting hosted several expert-led key addresses and focus sessions, in which work was critically discussed, new developments were shared, and groundwork was laid for future projects. The conference emphasized the importance of ongoing COS work to improve patient outcomes and limit research waste.

Keywords: Core outcome set; Development; Methodology; Proceeding.

MeSH terms

Food Hypersensitivity*
Humans
Outcome Assessment, Health Care* / methods
Research Design
Treatment Outcome