Family physicians' and trainees' experiences regarding cancer screening with patients with intellectual disability: An interpretive description study

J Intellect Disabil. 2023 Mar;27(1):250-265. doi: 10.1177/17446295211044041. Epub 2022 Feb 22.

Abstract

People with intellectual disability receive breast, cervical, and colorectal cancer screening at lower rates relative to the general population, although the reasons for this disparity are largely unknown. Research, both with the general population and specific to people with intellectual disability, has revealed that a family physician's recommendation for cancer screening or continuity of primary care may increase screening rates. We interviewed family physicians and family medicine trainees regarding their experiences recommending cancer screening to patients with intellectual disability. We concluded that the decision to recommend cancer screening is complex, and includes physicians weighing their clinical judgement as to the best provision of care for patients with a patient's eligibility for screening, while continuing to respect patients' autonomy. This patient-physician interaction occurs within the larger medical environment. Further research with experienced family physicians is warranted to better understand this complex phenomenon.

Keywords: cancer screening; family medicine; intellectual disability; primary care; qualitative research.

MeSH terms

  • Early Detection of Cancer / methods
  • Humans
  • Intellectual Disability* / diagnosis
  • Neoplasms* / diagnosis
  • Physician-Patient Relations
  • Physicians, Family