FAIR and Quality Assured Data - The Use Case of Trueness

Stud Health Technol Inform. 2022 Jan 14:289:25-28. doi: 10.3233/SHTI210850.

Abstract

The FAIR Guiding Principles do not address the quality of data and metadata. Therefore, data collections could be FAIR but useless. In a funding initiative of registries for health services research, trueness of data received special attention. Completeness in the definition of recall was selected to represent this dimension in a cross-registry benchmarking. The first analyses of completeness revealed a diversity of its implementation. No registry was able to present results exactly as requested in a guideline on data quality. Two registries switched to a source data verification as alternative, the three others downsized to the dimension integrity. The experiences underline that the achievement of appropriate data quality is a matter of costs and resources, whereas the current Guiding Principles quote for a transparent culture regarding data and metadata. We propose the extension to FAIR-Q, data collections should not only be findable, accessible, interoperable, and reusable, but also quality assured.

Keywords: Completeness; data quality; health services research; registries; validity.

MeSH terms

  • Data Accuracy*
  • Health Services Research
  • Metadata*
  • Registries