Background: The family members of patients with multiple sclerosis (MS) are called to become carers, playing a vital and difficult role in supporting the patients in their daily life. The aim of this study was to investigate the extent of the multidimensional burden on the carers of multiple sclerosis.
Methods: Data were collected from 111 carers with MS patients. The survey was conducted in Patras General Hospital.
Results: According to the research findings, the multidimensional burden of carers is proportional to the severity of the patient's condition. In particular, the majority of patients were in a good kinetic state, so the carers examined felt gentle with a moderate burden. On both scales, Zarit and BAKAS, it was observed that the age of the caregiver, the type of care he provides, and the patient's dependence on him increase the feeling of the burden. Positive results from care improve the caregiver's relationship with the patient, his self-esteem, and his ability to cope with stress. According to the F-COPES scale, it is observed that the relationship between the caregiver and the patient is responsible for accepting the problem; the greater the caregiver's age, the higher the percentage of those seeking help from doctors, social services.
Conclusions: The burden on carers is indisputable; support from family members, social and economic support, and education may mitigate the burden of care.
Keywords: Burden- charge; Care; Caregiver; Family burden.
© 2021. The Author(s), under exclusive license to Springer Nature Switzerland AG.