PaísDI: Feasibility and effectiveness of an advocacy program for adults with intellectual disability and their stakeholders' groups in Chile

J Appl Res Intellect Disabil. 2022 Mar;35(2):633-638. doi: 10.1111/jar.12951. Epub 2021 Oct 17.

Abstract

Background: People with intellectual disability in Chile face individual and collective barriers to social participation. Lack of knowledge about their rights and tools for effective self-advocacy seem to be key elements that need to be improved to facilitate participation.

Method: We present PaísDI, a 16 h long manualised program created by self-advocates in collaboration with an interdisciplinary team, with four modules: rights and intellectual disability, leadership in intellectual disability, effective communication and financial considerations of social projects. This quasi-experimental study had 349 participants, divided in three groups: people with intellectual disability, relatives and professionals. Feasibility and effectiveness where measured.

Results: The program is shown to be viable and effective, especially in its impact on self-perception for self-advocacy activities.

Conclusion: The discussion highlights Chile's historic debt in creating policies that promote self-determination, knowledge and the empowerment of people with intellectual disability, to bolster their participation as citizens.

Keywords: South America; advocacy; empowerment; intellectual disability; rights; self-advocacy.

MeSH terms

  • Adult
  • Chile
  • Feasibility Studies
  • Humans
  • Intellectual Disability*
  • Personal Autonomy
  • Social Participation