A quality of life supports model: Six research-focused steps to evaluate the model and enhance research practices in the field of IDD

Res Dev Disabil. 2021 Dec:119:104112. doi: 10.1016/j.ridd.2021.104112. Epub 2021 Oct 14.

Abstract

In the field of intellectual and developmental disabilities (IDD) the constructs of quality of life and supports have been combined into a Quality of Life Supports Model (QOLSM) that is currently used internationally for supports provision, organization transformation, and systems change. With the model's increasing and widespan use in research and practice, there is a need to evaluate the model's impact at the individual, organization, and systems levels. The purpose of this article is to outline six specific research-focused evaluation steps that allow researchers to evaluate the model and thereby enhance research practices is the field of IDD. These steps involve: (1) operationalizing components of the QOLSM; (2) relating QOLSM components to the type of research planned and intended outcome indicators; (3) gathering evidence and establishing its credibility; (4) interpreting and communicating the results; (5) implementing research outcomes at the level of the microsystem, mesosystem and macrosystem; and (6) judging the impact of the model. These steps delineate a research framework that is based on a systematic approach to evidence-based practices and enhanced research practices in the field of IDD.

Keywords: Developmental disabilities; Intellectual disability; Methodology; Quality of life; Quality of life supports model; Research; Supports.

MeSH terms

  • Child
  • Developmental Disabilities*
  • Evidence-Based Practice
  • Humans
  • Intellectual Disability*
  • Quality of Life