Healthcare professionals' perspectives of patient and family preferences of patient place of death: a qualitative study

Manjusha K Sathiananthan; Gregory B Crawford; Jaklin Eliott

doi:10.1186/s12904-021-00842-y

Healthcare professionals' perspectives of patient and family preferences of patient place of death: a qualitative study

BMC Palliat Care. 2021 Sep 20;20(1):147. doi: 10.1186/s12904-021-00842-y.

Authors

Manjusha K Sathiananthan¹, Gregory B Crawford^{2

3}, Jaklin Eliott⁴

Affiliations

¹ The University of Adelaide, Adelaide, Australia.
² Northern Adelaide Palliative Services, Northern Adelaide Local Health Network, Adelaide, South Australia.
³ Adelaide Medical School, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, Australia.
⁴ School of Public Health, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, Australia. jaklin.eliott@adelaide.edu.au.

Abstract

Background: Home death is one of the key performance indicators of the quality of palliative care service delivery. Such a measure has direct implications on everyone involved at the end of life of a dying patient, including a patient's carers and healthcare professionals. There are no studies that focus on the views of the team of integrated inpatient and community palliative care service staff on the issue of preference of place of death of their patients. This study addresses that gap.

Methods: Thirty-eight participants from five disciplines in two South Australian (SA) public hospitals working within a multidisciplinary inpatient and community integrated specialist palliative care service, participated in audio-recorded focus groups and one-on-one interviews. Data were transcribed and thematically analysed.

Results: Two major and five minor themes were identified. The first theme focused on the role of healthcare professionals in decisions regarding place of death, and consisted of two minor themes, that healthcare professionals act to: a) mediate conversations between patient and carer; and b) adjust expectations and facilitate informed choice. The second theme, healthcare professionals' perspectives on the preference of place of death, comprised three minor themes, identifying: a) the characteristics of the preferred place of death; b) home as a romanticised place of death; and c) the implications of idealising home death.

Conclusion: Healthcare professionals support and actively influence the decision-making of patients and family regarding preference of place of death whilst acting to protect the relationship between the patient and their family/carer. Further, according to healthcare professionals, home is neither always the most preferred nor the ideal place for death. Therefore, branding home death as the ideal and hospital death as a failure sets up families/carers to feel guilty if a home death is not achieved and undermines the need for and appropriateness of death in institutionalised settings.

Keywords: Healthcare professionals; Home death; Palliative care; Place of death.

MeSH terms

Australia
Caregivers
Delivery of Health Care
Health Personnel*
Humans
Palliative Care
Qualitative Research
Terminal Care*