Establishing a National Community of Practice for Newborn Screening Follow-Up

Erin Darby; John Thompson; Carol Johnson; Sikha Singh; Jelili Ojodu

doi:10.3390/ijns7030049

Establishing a National Community of Practice for Newborn Screening Follow-Up

Int J Neonatal Screen. 2021 Jul 26;7(3):49. doi: 10.3390/ijns7030049.

Authors

Erin Darby¹, John Thompson², Carol Johnson³, Sikha Singh¹, Jelili Ojodu¹

Affiliations

¹ Association of Public Health Laboratories, Silver Spring, MD 20910, USA.
² Newborn Screening Laboratory, Public Health Laboratories, Washington State Department of Health, Shoreline, WA 98155, USA.
³ Stead Family Children's Hospital, University of Iowa, Iowa City, IA 52242, USA.

Abstract

Newborn screening (NBS) follow-up programs in the United States are managed at the state level, leaving limited opportunities for collaboration across programs and coordinated resource sharing. The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs), a program of the Association of Public Health Laboratories (APHL), has established a national community of practice for NBS follow-up by creating a network of follow-up staff and stakeholders through education and engagement opportunities. The activities of NewSTEPs in support of NBS follow-up have strengthened information dissemination, collaboration, data collection and technical assistance-driven mentorship across the national system.

Keywords: community of practice; follow-up; newborn screening; short-term follow-up; technical assistance.

Grants and funding

U22MC24078/HRSA/HRSA HHS/United States