A qualitative study of self-management experiences in people with non-alcoholic fatty liver disease

Abstract

Aim: The aim of the study was to explore the experiences of self-management in patients with non-alcoholic fatty liver disease (NAFLD).

Design: The study employed an exploratory descriptive qualitative study using focus group interviews.

Methods: Twelve participants with NAFLD were recruited from a university hospital in South Korea. The date of data collection was from November-December 2018, and the data were analysed using Braun and Clarke's thematic analysis.

Results: Three themes and seven subthemes were identified. The themes were (1) facing unexpected obstacles, (2) finding my own path and (3) unmet support needs from healthcare providers. Subthemes included (1) ambiguity in changing lifestyle, (2) confusion caused by inconsistent information overload, (3) not knowing much about the liver nor NAFLD, (4) putting small plans into action every day, (5) getting help from family and friends as care partners, (6) needs for tailored medical help and (7) needs for caring and attentive attitudes.

Keywords: non-alcoholic fatty liver disease; qualitative research; self-management.