Patient engagement in care: A scoping review of recently validated tools assessing patients' and healthcare professionals' preferences and experience

Nathalie Clavel; Jesseca Paquette; Vincent Dumez; Claudio Del Grande; Djahanchah Philip Sacha Ghadiri; Marie-Pascale Pomey; Louise Normandin

doi:10.1111/hex.13344

Patient engagement in care: A scoping review of recently validated tools assessing patients' and healthcare professionals' preferences and experience

Health Expect. 2021 Dec;24(6):1924-1935. doi: 10.1111/hex.13344. Epub 2021 Aug 16.

Authors

Nathalie Clavel¹, Jesseca Paquette², Vincent Dumez³, Claudio Del Grande^{2

4}, Djahanchah Philip Sacha Ghadiri⁵, Marie-Pascale Pomey^{2

3

4}, Louise Normandin²

Affiliations

¹ Ingram School of Nursing, McGill University, Montreal, Quebec, Canada.
² Health Innovation and Evaluation Hub, University of Montreal Hospital Center, Montreal, Quebec, Canada.
³ Center of Excellence on Partnership with Patients and the Public, University of Montreal, Montreal, Quebec, Canada.
⁴ Department of Health Management, Evaluation and Policy, School of Public Health, University of Montreal, Montreal, Quebec, Canada.
⁵ Department of Management, HEC MONTRÉAL, Montreal, Quebec, Canada.

Abstract

Background: Patient engagement in care is a priority and a key component of clinical practice. Different approaches to care have been introduced to foster patient engagement. There is a lack of a recent review on tools for assessing the main concepts and dimensions related to patient engagement in care.

Objective: Our scoping review sought to map and summarize recently validated tools for assessing various concepts and dimensions of patient engagement in care.

Search strategy: A scoping review of recent peer-reviewed articles describing tools that assess preferences in and experience with patient engagement in care was conducted in four databases (Ovid Medline, Ovid EMBASE, Cochrane Database of Systematic Reviews, CINAHL-EBSCO). We adopted a broad definition based on the main concepts of patient engagement in care: patient-centredness, empowerment, shared decision-making and partnership in care.

Main results: Of 2161 articles found, 16, each describing a different tool, were included and analysed. Shared decision-making and patient-centredness are the two main concepts evaluated, often simultaneously in most of the tools. Only four scales measure patient-centredness, empowerment and shared decision-making at the same time, but no tool measures the core dimensions of partnership in care. Most of the tools did not include patients in their development or validation or just consulted them during the validation phase.

Discussion and conclusion: There is no tool coconstructed with patients from development to validation, which can be used to assess the main concepts and dimensions of patient engagement in care at the same time.

Patient and public contribution: This manuscript was prepared with a patient expert who is one of the authors. Vincent Dumez, who is a patient expert and codirector of the Center of Excellence on Partnership with Patients and the Public, has contributed to the preparation of the manuscript.

Keywords: clinical care; healthcare professionals; patient engagement; patients; scoping review; validated tools.

Publication types

Research Support, Non-U.S. Gov't
Review

MeSH terms

Decision Making, Shared*
Health Personnel
Humans
Patient Participation*
Systematic Reviews as Topic