"It's like having an evil twin": an interpretative phenomenological analysis of the lifeworld of a person with Parkinson's disease

J Res Nurs. 2019 Mar;24(1-2):49-58. doi: 10.1177/1744987118821396. Epub 2019 Mar 5.

Abstract

Background: This paper offers an understanding of the lifeworld of a person with Parkinson's Disease derived from interpretative phenomenological analysis (IPA).

Aims: The paper has two main aims: firstly, to demonstrate how a focus on individual experience chimes with and can inform current ideas of a more personalised humanised form of healthcare for people living with Parkinson's disease; and secondly, to demonstrate how an IPA study can illuminate particularity whilst being able to make, albeit cautiously, more general knowledge claims that can inform wider caring practices.

Methods: It achieves these aims through the detailed description and interpretation of one person's experience of living with Parkinson's disease using the IPA approach.

Results: Three analytic themes point to how the various constituents of the lifeworld, such as embodiment, selfhood, temporality and relationality are made manifest. These enable the IPA researcher to make well-judged inferences, which can have value beyond the individual case.

Conclusions: A key feature of IPA is its commitment to an idiographic approach that recognises the value of understanding a situated experience from the perspective of a particular person or persons.

Keywords: case study; chronic illness; compassionate care; lifeworld; older people; phenomenology; qualitative.