The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs

Marion Wilkens; Michael Bartlett; Frank Willersinn; Karen O'Hara; Jeanette Boyd; Jessica Denning

doi:10.1183/20734735.0340-2020

The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs

Breathe (Sheff). 2021 Mar;17(1):200340. doi: 10.1183/20734735.0340-2020.

Authors

Marion Wilkens¹, Michael Bartlett², Frank Willersinn³, Karen O'Hara⁴, Jeanette Boyd⁵, Jessica Denning⁵

Affiliations

¹ Alpha1 Deutschland e.V, Gernsheim, Germany.
² Braintree, UK.
³ Alpha-1 PLUS, Brussels, Belgium.
⁴ Alpha-1 UK Support Group, Droitwich, UK.
⁵ European Lung Foundation, Sheffield, UK.

Abstract

Three people with alpha-1 antitrypsin deficiency (AATD) share their experiences of living with this rare, genetic condition. They reflect on living with AATD and its impact on their lives including inequality of access to treatment across Europe. https://bit.ly/3rrYS9s.

Publication types

Editorial