European clinical guidelines for Tourette syndrome and other tic disorders: summary statement

Kirsten R Müller-Vahl; Natalia Szejko; Cara Verdellen; Veit Roessner; Pieter J Hoekstra; Andreas Hartmann; Danielle C Cath

doi:10.1007/s00787-021-01832-4

European clinical guidelines for Tourette syndrome and other tic disorders: summary statement

Eur Child Adolesc Psychiatry. 2022 Mar;31(3):377-382. doi: 10.1007/s00787-021-01832-4. Epub 2021 Jul 10.

Authors

Kirsten R Müller-Vahl¹, Natalia Szejko^{2

3

4}, Cara Verdellen^{5

6}, Veit Roessner⁷, Pieter J Hoekstra⁸, Andreas Hartmann⁹, Danielle C Cath^{10

11}

Affiliations

¹ Clinic of Psychiatry, Social Psychiatry and Psychotherapy, Hannover Medical School, Carl-Neuberg-Str. 1, 30625, Hannover, Germany. mueller-vahl.kirsten@mh-hannover.de.
² Department of Neurology, Medical University of Warsaw, Warsaw, Poland.
³ Department of Bioethics, Medical University of Warsaw, Warsaw, Poland.
⁴ Department of Neurology, Yale School of Medicine, Yale University, New Haven, USA.
⁵ PsyQ Nijmegen, Parnassia Group, Nijmegen, The Netherlands.
⁶ TicXperts, Heteren, The Netherlands.
⁷ Department of Child and Adolescent Psychiatry, TU Dresden, Dresden, Germany.
⁸ Department of Child and Adolescent Psychiatry, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
⁹ Department of Neurology, Hôpital de la Pitié-Salpêtrière, Paris, France.
¹⁰ Department of Specialist Trainings, GGZ Drenthe Mental Health Institution, Assen, The Netherlands.
¹¹ Department of Psychiatry, University Medical Center Groningen, Rijks University Groningen, Groningen, The Netherlands.

Abstract

In 2011 a working group of the European Society for the Study of Tourette syndrome (ESSTS) developed the first European Guidelines for Tourette syndrome (TS) published in the ECAP journal. After a decade ESSTS now presents updated guidelines, divided into four sections: Part I: assessment, Part II: psychological interventions, Part III: pharmacological treatment and Part IV: deep brain stimulation (DBS). In this paper, we summarise new developments described in the guidelines with respect to assessment and treatment of tics. Further, summary findings from a recent survey conducted amongst TS experts on these same topics are presented, as well as the first European patient representative statement on research. Finally, an updated decision tree is introduced providing a practical algorithm for the treatment of patients with TS. Interestingly, in the last decade there has been a significant shift in assessment and treatment of tics, with more emphasis on non-pharmacological treatments.

Keywords: Classification; Comorbidities; Guidelines; Tics; Tourette syndrome; Treatment.

Publication types

Review

MeSH terms

Humans
Tic Disorders* / diagnosis
Tic Disorders* / therapy
Tics* / diagnosis
Tics* / therapy
Tourette Syndrome* / diagnosis
Tourette Syndrome* / psychology
Tourette Syndrome* / therapy