Patient-reported experience is associated with improved patient safety and clinical outcomes. Quality improvement programs rely on validated patient-reported experience measures (PREMs) to design projects. This descriptive study compares the experience of cancer patients treated with radiation as recorded through the Ambulatory Oncology Patient Satisfaction Survey (AOPSS) or as recorded through Your Voice Matters (YVM) between February and August 2019. Six questions were compared ("overall experience with care", "discussion of worries", "involvement in decisions", "trusting providers with confidential information", "providing family with information", and "knowing who to contact"). Positive experience scores were calculated by cohort and by tumor groups. Multivariable logistic regression models evaluated factors associated with positive experience. Two cohorts (220 and 200 patients) met the eligibility criteria for the AOPSS and YVM, respectively. Positive experience was reported similarly between the two PREMs for "overall experience with care", "discussion of worries", and "trusting providers with confidential information" with a score difference of 1-4% at the cohort level. Positive experience score difference ranged from 5% to 44% across questions at the tumor group level. Different experience gaps were identified with the two measures, mainly at the tumor group level. Programs interested in using these PREMS might consider this when designing projects.
Keywords: AOPSS; YVM oncology; Your Voice Matters; ambulatory; ambulatory oncology patient satisfaction survey; cancer; patient-centred care; patient-reported experience; person-centred care.