Application of the community dialogues method to identify ethical values and priorities related to pharmacogenomics

Pharmacogenomics. 2021 Jul;22(11):693-701. doi: 10.2217/pgs-2021-0017. Epub 2021 Jun 11.

Abstract

Given the expansion of genetics in medicine, there is a growing need to develop approaches to engage patients in understanding how genetics affects their health. Various qualitative methods have been applied to gain a deeper understanding of patient perspectives in topics related to genetics. Community dialogues (CD) are a bi-directional research method that invites community members to discuss a pertinent, challenging topic over the course of a multi-week period and the community members openly discuss their positions on the topic. Authors discuss the first application of the CD method to the topic of pharmacogenetics testing. Additional CD are needed to engage diverse participant populations on this topic to improve genetics literacy, enhance physician engagement and drive policy change.

Keywords: bioethics; community dialogues; patient-centered outcomes research; personalized medicine; pharmacogenetics testing; pharmacogenomics; precision medicine; values.

Publication types

  • Review

MeSH terms

  • Bioethical Issues / standards
  • Focus Groups / standards
  • Health Literacy / ethics*
  • Health Literacy / standards
  • Humans
  • Pharmacogenetics / ethics*
  • Pharmacogenetics / standards
  • Pharmacogenomic Testing / ethics*
  • Pharmacogenomic Testing / standards
  • Precision Medicine / ethics*
  • Precision Medicine / standards