Searching for What Really Matters: A Thematic Analysis of Quality of Life among Preschool Children on the Autism Spectrum

J Autism Dev Disord. 2022 May;52(5):2098-2111. doi: 10.1007/s10803-021-05097-3. Epub 2021 May 31.

Abstract

Quality of life (QoL) is an essential measure when assessing health interventions. Most early interventions for preschool children on the spectrum evaluate the effects on autism symptoms. However, researchers increasingly believe that good interventions should also improve the QoL of these children. Domains of QoL among preschool children on the autism spectrum have not previously been researched. We interviewed adults on the spectrum to explore early childhood experiences that made their lives satisfying. Our data revealed four major themes: interests, environmental regularity, sensory differences and social interactions. This study provides the first insights on aspects of life important to pre-schoolers on the spectrum. Findings will contribute to developing items for a measure of QoL among this population.

Keywords: Autism spectrum disorder; Children; Preschool; Quality of life; Thematic analysis.

MeSH terms

  • Adult
  • Autism Spectrum Disorder* / diagnosis
  • Autistic Disorder*
  • Child
  • Child Development Disorders, Pervasive*
  • Child, Preschool
  • Early Intervention, Educational
  • Humans
  • Quality of Life