Postponed Withholding: Balanced Decision-Making at the Margins of Viability

Am J Bioeth. 2022 Nov;22(11):15-26. doi: 10.1080/15265161.2021.1925777. Epub 2021 May 17.

Abstract

Advances in neonatology have led to improved survival for periviable infants. Immaturity still carries a high risk of short- and long-term harms, and uncertainty turns provision of life support into an ethical dilemma. Shared decision-making with parents has gained ground. However, the need to start immediate life support and the ensuing difficulty of withdrawing treatment stands in tension with the possibility of a fair decision-making process. Both the parental "instinct of saving" and "withdrawal resistance" involved can preclude shared decision-making. To help health care personnel and empower parents, we propose a novel approach labeled "postponed withholding." In the absence of a prenatal advance directive, life support is started at birth, followed by planned redirection to palliative care after one week, unless parents, after a thorough counseling process, actively ask for continued life support. Despite the emotional challenges, this approach can facilitate ethically balanced decision-making processes in the gray zone.

Keywords: Children and families; decision-making; end-of-life issues; pediatrics: neonatology; professional-patient relationship.

MeSH terms

  • Decision Making*
  • Female
  • Humans
  • Infant, Newborn
  • Neonatology*
  • Palliative Care
  • Parents / psychology
  • Pregnancy
  • Withholding Treatment