Completion of advance directives among African Americans and Whites adults

Patient Educ Couns. 2021 Nov;104(11):2763-2771. doi: 10.1016/j.pec.2021.03.031. Epub 2021 Mar 31.

Abstract

Objective: The primary purpose of this study was to analyze the completion of advance directives among African American and White adults and examine related factors, including demographics, socio-economic status, health conditions, and experiences with health care providers.

Methods: This study used data from the Survey of California Adults on Serious Illness and End-of-Life 2019. We compared correlates of completion of advance directives among a sample of 1635 African American and White adults. Multivariate analysis was conducted.

Results: Whites were 50% more likely to complete an advance directive than African Americans. The major differences between African Americans and Whites were mainly explained by the level of mistrust and discrimination experienced by African Americans and partially explained by demographic characteristics. Our study showed that at both bivariate and multivariate levels, participation in religious activities was associated with higher odds of completion of an advance directive for both African Americans and Whites.

Conclusion: Interventional studies needed to address the impact of mistrust and perceived discrimination on advance directive completion.

Practical implications: Culturally appropriate multifaceted, theoretical- and religious-based interventions are needed that include minority health care providers, church leaders, and legal counselors to educate, modify attitudes, provide skills and resources for communicating with health care providers and family members.

Keywords: Advance directives; African Americans; Discrimination; Ethnicity/Race; Mistrust.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adult
  • Advance Directives
  • Black or African American*
  • Family
  • Humans
  • Perceived Discrimination*
  • Surveys and Questionnaires