The Long Shadow: Collateral Impact and Finding Resilience Amidst a Global Pandemic Pediatric Palliative Care Social Work During COVID-19

J Soc Work End Life Palliat Care. 2021 Apr-Sep;17(2-3):218-236. doi: 10.1080/15524256.2021.1894312. Epub 2021 Mar 15.

Abstract

This manuscript illuminates the nuanced ways in which the COVID-19 pandemic has impacted the pediatric palliative care social work role and clinical care in caring for children with life-limiting illnesses and their families throughout the country. The authors discuss memorable moments, logistical impacts, telehealth usage, decision-making experiences, end of life care, bereavement practices, specialized interventions, and self-care. The paper concludes with lessons learned and practical recommendations for the future.

Keywords: Bereavement; decision-making; pediatric palliative care; self-care; social work.

MeSH terms

  • Attitude to Death
  • COVID-19 / psychology*
  • COVID-19 / therapy
  • Child
  • Child Welfare / psychology*
  • Depression / psychology
  • Humans
  • Palliative Care / psychology*
  • Quality of Life / psychology*
  • Social Workers / psychology*