'You don't look autistic': A qualitative exploration of women's experiences of being the 'autistic other'

Autism. 2021 Aug;25(6):1553-1564. doi: 10.1177/1362361321993722. Epub 2021 Mar 15.

Abstract

Most autism spectrum condition research addresses the neurological and biological causes of autism spectrum condition, focusing upon deficits associated with autism spectrum condition and behavioural interventions designed to minimise these deficits. Little is known about the lived experiences of adult women on the autism spectrum and how they navigate social expectations around gender, autism spectrum condition and gendered understandings of autism spectrum condition. The lived experiences of eight women on the AS will be shared here, with attention to how gendered expectations influence women's experiences of autism spectrum condition, their sense of self and well-being. Findings showed these women struggled to reconcile the expectations of others, particularly early in life. The women had difficultly conforming to stereotypical ideals of femininity, yet as they aged, they felt less need to conform, valuing their unique style and behaviours. The women also rejected deficit-oriented descriptions of autism spectrum condition generated by the medical community, preferring to focus on their strengths and unique characteristics. It is hoped this article helps psychologists and the wider community to understand and meet the needs of women on the AS.

Keywords: adult autism; female autism; gender; social constructionism.

MeSH terms

  • Adult
  • Aged
  • Autism Spectrum Disorder*
  • Autistic Disorder*
  • Female
  • Gender Identity
  • Humans
  • Qualitative Research