A transition out of the darkness: Patients' experience of the recovery phase after treatment for head and neck cancer

Abstract

Purpose: To explore the recovery experience of patients who completed medical treatment for head and neck cancer (HNC).

Method: The study conducted interviews with a strategic sample of 12 patients at an oncology clinic. Interview data were analyzed by qualitative content analysis with a deductive approach based on transition theory.

Results: The transition theory coding frame for patients' descriptions of their recovery process produced four categories: properties, personal conditions, process indicators, and outcome indicators. Personal conditions, such as cultural beliefs and attitudes, impact the outcome of recovery, and necessitate interaction throughout the care chain using the person-centered care approach to help survivors master their changed living conditions during recovery after HNC. The transition was described as a journey out of a dark period characterized by a struggle with the side effects of chemotherapy and radiation treatment.

Conclusions: This study highlighted the use of person-centered care to facilitate transition in the recovery phase, supported by an intra-professional team that collaborates during the care chain (primary care to hospital care). Patient education and self-care are tools that improve the transition from illness to everyday life.

Keywords: Head and neck cancer; Patients' experiences; Person-centered care; Qualitative content analysis; Recovery phase; Teamwork; Transition theory.