Online Self-Determination Toolkit for Youth With Disabilities: Protocol for a Mixed Methods Evaluation Study

Sally Lindsay; Polina Kosareva; Mahadeo Sukhai; Nicole Thomson; Jennifer Stinson

doi:10.2196/20463

Online Self-Determination Toolkit for Youth With Disabilities: Protocol for a Mixed Methods Evaluation Study

JMIR Res Protoc. 2021 Jan 11;10(1):e20463. doi: 10.2196/20463.

Authors

Sally Lindsay^{1

2}, Polina Kosareva¹, Mahadeo Sukhai³, Nicole Thomson⁴, Jennifer Stinson⁵

Affiliations

¹ Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital and University of Toronto, Toronto, ON, Canada.
² Department of Occupational Science & Occupational Therapy, University of Toronto, Toronto, ON, Canada.
³ Canadian National Institute for the Blind, Toronto, ON, Canada.
⁴ Center for Addiction and Mental Health, Toronto, ON, Canada.
⁵ Lawrence Bloomberg Faculty of Nursing and Hospital for Sick Children, Toronto, ON, Canada.

PMID: 33427688
PMCID: PMC7834931
DOI: 10.2196/20463

Abstract

Background: Youth with disabilities encounter many challenges during their transition to adulthood including finding employment. Jobs are often inaccessible, and youth often face a lack of support, discriminatory attitudes, and sometimes low self-confidence. Therefore, it is critical to help youth enhance their self-determination skills to advocate for their needs in the workplace.

Objective: The aim of this paper is to describe how an online toolkit aimed to improve self-determination in advocating for needs, including disability disclosure and accommodation requests to employers, was co-created with youth with disabilities.

Methods: We will use a mixed method design in which qualitative data (ie, focus groups and mentored discussion forum) are collected to understand the contextual factors during the intervention that could affect outcomes or explain results through the pre-post questionnaires. Fifty youths with disabilities aged 15 to 24 years will be recruited.

Results: Data collection is in progress. Planned analyses include focus groups and pre-post surveys to determine the impact of the intervention on self-determination. A qualitative content analysis of the focus groups and all open-ended survey questions will be conducted to understand the impact of the toolkit.

Conclusions: Our online toolkit includes evidence-informed content that was co-created with youth who have a disability. It has potential for educational and vocational programming for youth with disabilities.

International registered report identifier (irrid): PRR1-10.2196/20463.

Keywords: disability; involvement; occupational therapy; rehabilitation; youth.

©Sally Lindsay, Polina Kosareva, Mahadeo Sukhai, Nicole Thomson, Jennifer Stinson. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 11.01.2021.