Understanding and Enhancing Support Group Participation Among Adolescent and Young Adult Cancer Survivors: The Impact of Integrating Adolescent and Young Adult Cancer Navigation Services

J Adolesc Young Adult Oncol. 2021 Aug;10(4):488-492. doi: 10.1089/jayao.2020.0164. Epub 2020 Dec 4.

Abstract

This quality improvement initiative aimed to (1) explore the impact of adolescent and young adult (AYA)-specific navigation on attendance at a monthly peer support group for survivors aged 18-39 at a large comprehensive cancer center, and (2) better understanding attendees' preferences for group structure. Group attendance significantly increased following integration of AYA navigation. Using an online survey, we identified priority topics for discussion and desired changes to group organization, leading to modifications to group structure. Results highlight the value of having dedicated staff who proactively orient patients to resources tailored to their unique needs, and the importance of flexible program development that incorporates stakeholder input.

Keywords: patient navigation; quality improvement; support group; survey.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Cancer Survivors*
  • Humans
  • Neoplasms* / therapy
  • Self-Help Groups
  • Surveys and Questionnaires
  • Survivors
  • Young Adult