Assessing clinical education tools for expanded carrier screening

J Genet Couns. 2021 Apr;30(2):606-615. doi: 10.1002/jgc4.1349. Epub 2020 Nov 1.

Abstract

Expanded carrier screening (ECS) is increasingly offered to a broader population and raises challenges of how to best educate and counsel the volume of screened individuals. For this study, we compared three educational tools (brochure, video and comic) about ECS on knowledge and decision making. A convenience online sample of 151 pregnant women was randomized to one of three groups (Video, n = 42; Comic n = 54; Brochure n = 55). Knowledge scores were significantly higher for the comic group compared to the video or the brochure groups (p < .001). No significant differences in preparation for decision making, decisional conflict, or perceptions of shared decision making were identified between the study groups. This study suggests that a comic about ECS may improve patient attention and retention of information. The use of graphic narratives may enable individuals to better understand medical information in general.

Keywords: carrier screening; counseling techniques; decision making; education; genetic counseling; population screening.

Publication types

  • Randomized Controlled Trial
  • Research Support, N.I.H., Extramural

MeSH terms

  • Decision Making
  • Educational Status
  • Female
  • Genetic Carrier Screening
  • Humans
  • Knowledge*
  • Mass Screening*
  • Pregnancy