Surviving Survival-Challenge Accepted!: Perspectives on Survivorship in Pediatric Oncology

Carina Schneider; Jaap den Hartogh; Zuzana Tomášiková; Anita Kienesberger

doi:10.1016/j.pcl.2020.07.010

Surviving Survival-Challenge Accepted!: Perspectives on Survivorship in Pediatric Oncology

Pediatr Clin North Am. 2020 Dec;67(6):1011-1020. doi: 10.1016/j.pcl.2020.07.010.

Authors

Carina Schneider¹, Jaap den Hartogh², Zuzana Tomášiková³, Anita Kienesberger⁴

Affiliations

¹ Österreichische Kinder-Krebs-Hilfe (ÖKKH), Childhood Cancer International Europe, Borschkegasse 1/7, Wien 1090, Austria. Electronic address: c.schneider@ccieurope.eu.
² Vereniging Ouders, Kinderen en Kanker, Childhood Cancer International Europe, Schouwstede 2b, Nieuwegein 3431 JB, The Netherlands.
³ Kinderkrebs Schweiz, Childhood Cancer International Europe, Dornacherstrasse 154, Basel 4053, Switzerland.
⁴ Österreichische Kinder-Krebs-Hilfe (ÖKKH), Childhood Cancer International Europe, Borschkegasse 1/7, Wien 1090, Austria.

PMID: 33131531
DOI: 10.1016/j.pcl.2020.07.010

Abstract

Surviving childhood cancer can be a lifelong challenge: up to 75% of childhood cancer survivors must deal with late effects of their cancer and treatments. Next to keeping the balance between dealing with late-effects and adapting to a life "after cancer" many childhood cancer survivors also face the reality of inadequate or nonexisting follow-up care. Because cure is not enough, patient advocates depict why it is important to #RaiseYourHands4Survivors!

Keywords: (Childhood cancer) survivor; Late effects; Long-term follow-up; Patient advocacy; Patient-centered care; Survivors.

Publication types

Introductory Journal Article

MeSH terms

Cancer Survivors*
Humans
Medical Oncology*
Neoplasms / therapy*
Precision Medicine