Purpose: To investigate the degree of concordance on fatigue assessment between children and adolescents with cancer and their parents, and its changes over time.
Method: Multicentre longitudinal study.
Results: Data from 134 dyads were analysed. The mean age of patients was 11.7 years; caregivers had a mean age of 44.1 years. Almost 90% of patients already reported mild or moderate fatigue at the time of diagnosis, decreasing to 69.7% after one year. Concordance on the total fatigue improved over time for the total sample, moving from moderate at the time of diagnosis to good concordance after one year.
Conclusions: This was the first study with a longitudinal design investigating concordance between paediatric self-reports and parent proxy reports on fatigue. It showed how concordance between proxies and patients changed over time reaching a good level after one year from the cancer diagnosis.
Keywords: Adolescent; Cancer; Child; Concordance; Fatigue.
Copyright © 2020. Published by Elsevier Ltd.