Trends Over a Decade in NIH Funding for Autism Spectrum Disorder Services Research

J Autism Dev Disord. 2021 Aug;51(8):2751-2763. doi: 10.1007/s10803-020-04746-3. Epub 2020 Oct 10.

Abstract

Investments in autism spectrum disorder (ASD) research, guided by the Interagency Autism Coordinating Committee (IACC), have focused disproportionately on etiology over a well-established stakeholder priority area: research to improve accessibility and quality of community-based services. This study analyzed National Institutes of Health ASD services research funding from 2008 to 2018 to examine funding patterns, evaluate the impact of IACC objectives, and identify future directions. Approximately 9% of total funds were allocated to services research. This investment remained relatively stable across time and lacked diversity across domains (e.g., area of focus, ages sampled, implementation strategies used). While advancements were observed, including increased prevalence of projects focused on adult samples and on dissemination/implementation and prevention areas, greater investment in service research is critically needed.

Keywords: ASD policy; ASD services research; Autism spectrum disorder; Community Mental Health Services; Dissemination and implementation; National Institutes of Health (U.S.).

MeSH terms

  • Adolescent
  • Autism Spectrum Disorder / economics*
  • Autism Spectrum Disorder / epidemiology*
  • Autism Spectrum Disorder / therapy
  • Biomedical Research / economics*
  • Biomedical Research / trends*
  • Child
  • Child, Preschool
  • Data Analysis
  • Female
  • Financial Management / economics
  • Financial Management / trends
  • Humans
  • Male
  • National Institutes of Health (U.S.) / economics*
  • National Institutes of Health (U.S.) / trends*
  • Time Factors
  • United States / epidemiology