When benefit eligibility and patient-led care intersect. Living in the UK with chronic illness: Experiences of the work capability assessment

J Health Psychol. 2022 Feb;27(2):456-469. doi: 10.1177/1359105320953476. Epub 2020 Aug 28.

Abstract

Individuals living with chronic physical health conditions are more likely to be out-of-work than other groups. Often framed as a 'response' to these statistics, many countries have introduced policy instruments for promoting the employment of individuals with chronic conditions. This qualitative study sought to explore the impact of welfare reforms on UK individuals. Employing a phenomenological approach, semi-structured interviews were conducted with five participants living with chronic conditions. Three themes were generated using Interpretative Phenomenological Analysis: 'intersubjective sense making of the condition'; 'battles for control' and 'the fluidity and strengthening of identity'. Implications for further, holistic, policy reform are explored.

Keywords: ESA; benefits; chronic illness; interpretative phenomenological analysis (IPA); phenomenology; social security; universal credit; welfare.

MeSH terms

  • Chronic Disease*
  • Humans
  • Qualitative Research
  • United Kingdom