Survey of satisfaction regarding palliative care provided to patients who died at home or in a hospital

Int J Palliat Nurs. 2020 Aug 2;26(6):272-277. doi: 10.12968/ijpn.2020.26.6.272.

Abstract

Background: Improvement in quality of life (QoL) of patients is one of the most important goals of palliative care, but evaluation of QoL of patients is difficult.

Aim: To evaluate QoL of patients who died at home or in a hospital.

Methods: We administered the Good Death Inventory (10 core and 8 optional domains) to the bereaved families of patients who died at home or in a hospital. A total of 107 bereaved families undertook a survey.

Findings: If a bereaved family chose 'somewhat agree', 'agree' or 'absolutely agree', the answer was regarded as a 'satisfactory answer'. Regarding the 10 core domains, of patients who died in a hospital, <50% respondents gave a 'satisfactory answer' to three questions, whereas of patients who died at home, >60% of respondents gave a 'satisfactory answer' to seven questions. Regarding the eight optional domains, of patients who died in a hospital, <50% respondents gave a 'satisfactory answer' to five questions, whereas of patients who died at home, >60% of respondents gave a 'satisfactory answer' to four questions.

Conclusions: QoL of patients who died at home appeared higher than that of those who died in a hospital. Patients prefer to remain at home rather than in a hospital, probably because at home they are surrounded by familiar things and can live according to their usual habits.

Keywords: Evaluation; Palliative care; Quality of life; Survey.

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Aged, 80 and over
  • Bereavement
  • Child
  • Child, Preschool
  • Family*
  • Female
  • Hospitals*
  • Humans
  • Infant
  • Infant, Newborn
  • Male
  • Middle Aged
  • Neoplasms*
  • Palliative Care*
  • Patient Preference*
  • Quality of Life*
  • Surveys and Questionnaires
  • Young Adult