Challenges of Genetic Data Sharing in African Studies

Trends Genet. 2020 Dec;36(12):895-896. doi: 10.1016/j.tig.2020.07.010. Epub 2020 Aug 14.

Abstract

Data sharing is a valuable aspect of science and required by most funding bodies and journals. However, the national regulatory guidelines of many African nations do not explicitly allow for broad genetic data sharing. Given these restrictions, there is a need to reconsider these policies and propose creative solutions.

Keywords: ELSI; H3Africa; collaboration; ethics; genomic data sharing policy; international research.

Publication types

  • Review

MeSH terms

  • Africa
  • Genetic Research / legislation & jurisprudence*
  • Genomics / legislation & jurisprudence
  • Genomics / standards*
  • Humans
  • Information Dissemination / legislation & jurisprudence*
  • Information Dissemination / methods