1 CF Centre Cologne, Children's Hospital, University of Cologne, Faculty of Medicine and University Hospital Cologne, Cologne, Germany Silke.vanKoningsbruggen@uk-koeln.de.
2 European Cystic Fibrosis Society, Karup, Denmark.
3 Centre for Experimental Medicine, Queen's University Belfast, Belfast, UK.
4 CF Center and Lung Transplant Unit, University Hospitals Leuven, Leuven, Belgium.
Rare disease patients may suffer delayed access to new drugs as SARS-CoV-2 is disrupting clinical trials. This survey demonstrates that the European Cystic Fibrosis Clinical Trials Network is ideally placed to track and address such disruption.https://bit.ly/3hCw5dq