Missing the Mark: The Complexity of African American Dementia Family Caregiving

J Fam Nurs. 2020 Nov;26(4):294-301. doi: 10.1177/1074840720945329. Epub 2020 Aug 6.

Abstract

Alzheimer's disease and related dementias (ADRDs) have a significant impact on families. Family nurses are in an ideal position to address the needs of families affected by ADRD. However, to be most effective, family nurses and researchers need culturally appropriate theories to guide practice and research. On November 17, 2018, five nurse researchers presented findings of their research with African American families at the Gerontological Society of America's annual meeting. The results reported and the lively discussion that ensued suggested that the current paradigms framing research and practice with African American families affected by ADRD may not be adequate. There is a need to consider culturally congruent, family-centered theories to guide research and practice with this population of families.

Keywords: Alzheimer’s disease; cultural congruence; family caregiving; family nursing; older adult.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Alzheimer Disease / nursing*
  • Alzheimer Disease / psychology*
  • Black or African American / psychology*
  • Black or African American / statistics & numerical data
  • Caregivers / psychology*
  • Caregivers / statistics & numerical data
  • Culturally Competent Care / standards*
  • Dementia / nursing*
  • Dementia / psychology*
  • Family Nursing / standards*
  • Female
  • Humans
  • Male
  • Middle Aged
  • Practice Guidelines as Topic
  • United States