The Importance of Primary Immune Deficiency Registries: The United States Immunodeficiency Network Registry

Abstract

The importance of registries is vital for almost every human disease but crucial for rare disorders, where the centralized collection, organization, and quality check of data create a platform from where multiple analyses and scientific advances are possible. In this article, the authors review the creation of the United States Immunodeficiency Network registry, its role, and the numerous scientific achievements generated from the collective effort of many.

Keywords: Common variable immune deficiency; Immunoglobulin replacement; Primary immune deficiency; Registry.