Autistic Disorder: A 20 Year Chronicle

J Autism Dev Disord. 2021 Feb;51(2):677-684. doi: 10.1007/s10803-020-04568-3.

Abstract

The course of 187 individuals ages 3-21 years with Autistic Disorder was traced through a period of 20 years (enrollment: 1995-1998, follow up: 2014-2019). Specific genetic and environmental causes were identified in only a minority. Intellectual disability coexisted in 84%. Few became independent with 99% living at home with relatives, in disability group homes or in residential facilities. Seven individuals (3.7%) attained postsecondary education, two receiving baccalaureate degrees, two receiving associate degrees, and three receiving certificates from college disability programs. It may be anticipated that the long term outcome for individuals currently diagnosed with Autism Spectrum Disorder (ASD) will be substantially better than for individuals with Autistic Disorder in this cohort.

Keywords: Autism; Autistic disorder; Diagnostic and statistical manual; Genetics; Long term outcome.

MeSH terms

  • Adolescent
  • Autistic Disorder / diagnosis*
  • Autistic Disorder / genetics*
  • Autistic Disorder / psychology
  • Child
  • Child, Preschool
  • Cohort Studies
  • Educational Status
  • Female
  • Follow-Up Studies
  • Genetic Testing / methods
  • Humans
  • Intellectual Disability / diagnosis*
  • Intellectual Disability / genetics*
  • Intellectual Disability / psychology
  • Male
  • South Carolina / epidemiology
  • Surveys and Questionnaires*
  • Time Factors
  • Young Adult