Research ethics and Indigenous Peoples: Repercussions of returning Yanomami blood samples

Dev World Bioeth. 2020 Dec;20(4):209-215. doi: 10.1111/dewb.12264. Epub 2020 Jun 23.

Abstract

This work presents the case of the Yanomami indigenous people from Brazil that were the object of US ethnography initiated in the 1960s. The research brought harmful repercussions to the life of the Indigenous people of Brazil for several decades, and it took more than 40 years until the beginning of a process of reparation involving the Brazilian government and American universities. Objective: to discuss the meaning of the return of Yanomami blood samples, as well as contributions from the epistemologies of traditional Indigenous knowledge to the debate about research ethics and the structuring of means for the social control of researchers and the protection of participants in scientific studies, having as an example the Yanomami indigenous people from Brazil, subjected to noxious ethnography in the 1960s and the 1970s. This work used data reports recorded in secondary sources. In this article we argue that Bioethics needs to further diversify its epistemological foundations and to consider epistemologies and cosmologies beyond the frontiers of Western science, as the case of the abusive research involving the Yanomami indigenous people in Brazil reveals. We argue that traditional knowledge, such as those of indigenous and quilombolas, with their epistemologies and cosmologies, are fundamental for the election of less colonized and more efficient principles of research ethics, regarding the protection of the participants' rights in scientific studies. Traditional indigenous populations can teach us a great deal about doing research.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Anthropology, Cultural / ethics*
  • Bioethics*
  • Blood Specimen Collection / ethics*
  • Brazil
  • Cultural Competency / ethics*
  • Dissent and Disputes
  • Ethics, Research*
  • Government
  • Human Rights*
  • Humans
  • Indigenous Peoples*
  • Internationality
  • Knowledge
  • Research Subjects
  • United States
  • Universities