Hodgkin Lymphoma Survivor Wellness: Development of a Web-Based Intervention

Clin J Oncol Nurs. 2020 Jun 1;24(3):284-289. doi: 10.1188/20.CJON.284-289.

Abstract

Background: Informational and supportive care resources are needed for Hodgkin lymphoma (HL) survivors.

Objectives: The aim of this article is to adapt and evaluate a previously developed survivorship care website for HL survivors.

Methods: A mixed-methods, user-centered design, including one-time focus groups, was followed by iterative web design and user testing. Transcripts were content analyzed, and survey responses were summarized.

Findings: HL survivors need survivorship care education and support. Tailored web-based resources may be an effective adjunct to clinical care. The Survivor Wellness website is a usable web-based resource for HL survivors that may facilitate survivorship care.

Keywords: Hodgkin lymphoma; cancer survivors; user experience; web-based intervention.

MeSH terms

  • Adult
  • Aged
  • Cancer Survivors / psychology*
  • Continuity of Patient Care / organization & administration*
  • Curriculum
  • Education, Nursing, Continuing
  • Female
  • Hodgkin Disease / nursing*
  • Hodgkin Disease / psychology*
  • Humans
  • Internet-Based Intervention*
  • Male
  • Middle Aged
  • Oncology Nursing / education
  • Oncology Nursing / standards*
  • Practice Guidelines as Topic
  • Quality of Life / psychology*
  • Surveys and Questionnaires
  • Survivorship*
  • Young Adult