General-Purpose Privacy Regulation and Translational Genomics

William McGeveran; Caroline Schmitz

doi:10.1177/1073110520917002

General-Purpose Privacy Regulation and Translational Genomics

J Law Med Ethics. 2020 Mar;48(1):142-150. doi: 10.1177/1073110520917002.

Authors

William McGeveran¹, Caroline Schmitz¹

Affiliation

¹ William McGeveran, J.D., is Associate Dean for Academic Affairs and Julius E. Davis Professor of Law at the University of Minnesota. He is the author of a casebook and many articles on data privacy law, and serves as reporter for a Uniform Law Commission project to draft a model state privacy law. Caroline Schmitz, J.D., graduated cum laude from the University of Minnesota Law School in May 2019. While in law school, she participated in the Data Compliance Practicum and the Consumer Protection Clinic. She now works for the Federal Trade Commission (FTC) in its Division of Privacy & Identity Protection. Caroline participated in co-authoring this article in her personal capacity, not as a representative of the FTC, and the views expressed are her own and not necessarily those of the Commission or any individual Commissioner.

Abstract

At one time, specialized health privacy laws represented the bulk of the rules regulating genetic privacy, Today, however, as both the field of genomics and the content of privacy law change rapidly, a new generation of general-purpose privacy laws may impose new restrictions on collection, storage, and disclosure of genetic data. This article surveys these laws and considers implications.

MeSH terms

Confidentiality / legislation & jurisprudence*
Genetic Privacy
Genomics*
Government Regulation*
Humans
Privacy / legislation & jurisprudence*

Grants and funding

R01 HG008605/HG/NHGRI NIH HHS/United States