Exposing the Risks of Social Media Recruitment in Adolescents and Young Adults with Cancer: #Beware

J Adolesc Young Adult Oncol. 2020 Oct;9(5):601-607. doi: 10.1089/jayao.2020.0018. Epub 2020 Apr 22.

Abstract

Enrolling adolescents and young adults (AYAs) in psychosocial research studies during cancer treatment is challenging. Successful AYA study recruitment not specific to oncology patients supports social media network advertising and recruitment strategies. However, this brief report describes several challenges to recruiting an appropriate and credible anonymous sample while conducting Institutional Review Board-approved research using social media recruitment. Namely, ethical oversight impeded access to AYAs with cancer and monetary remuneration allured many noneligible AYA participants who accessed the online survey. Lessons learned from this study provide caution for researchers interested in a similar approach and illustrate ways to determine credibility of findings.

Keywords: active cancer treatment; adolescent young adult; psychosocial research; social media recruitment.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Humans
  • Risk Factors
  • Social Media / standards*
  • Young Adult