Assessment of a Structured Self-Management Support Intervention by Nurses for Patients With Incurable Cancer

Oncol Nurs Forum. 2020 May 1;47(3):305-317. doi: 10.1188/20.ONF.305-317.

Abstract

Objectives: To gain an understanding of the perceptions of patients with incurable cancer regarding a new nurse-led self-management support intervention with an integrated eHealth application (Oncokompas) and its potential effectiveness.

Sample & setting: 36 patients receiving support in the home setting.

Methods & variables: A pre- and post-test mixed-methods design was used with a period of 12 weeks between the tests and qualitative interviews. Outcome measures were the perceived application of the intervention, patient satisfaction, patient activation, and quality of life.

Results: 85% of patients were satisfied with the assessment of their needs and the advice received. They valued nurses' expertise and the assistance provided in their homes. Twenty-five percent of the patients used Oncokompas. However, no statistically significant changes in patient activation and quality of life were found.

Implications for nursing: This intervention can be used for encouraging self-management by patients with incurable cancer. Additional refinement and tailoring is desirable. Offering the intervention as early in the palliative phase as possible is recommended.

Keywords: eHealth; palliative care; patient activation; quality of life; self-management.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Female
  • Humans
  • Male
  • Middle Aged
  • Neoplasms / nursing*
  • Neoplasms / psychology*
  • Nurse-Patient Relations
  • Nursing Care / psychology*
  • Patient Satisfaction / statistics & numerical data*
  • Quality of Life / psychology*
  • Self-Management / psychology*
  • Surveys and Questionnaires
  • Telemedicine / methods*