Living with diabetes and disadvantage: A qualitative, geographical case study

J Clin Nurs. 2020 Jul;29(13-14):2710-2722. doi: 10.1111/jocn.15295. Epub 2020 May 7.

Abstract

Aims and objectives: To elucidate the experiences of people living with diabetes, residing in an urban diabetogenic area.

Background: Community-level social and environmental factors have a role to play in the development of type 2 diabetes mellitus. Socio-economic deprivation; high obesity rates; high access to fast foods; and multiculturalism contribute to higher rates of diabetes in some geographical areas. However, there is a lack of research examining people's experiences of living with diabetes in diabetogenic areas. The word diabetogenic implies that the phenomenon of interest contributes to the development of diabetes.

Design: Qualitative, geographical case study approach.

Methods: A convenience sample of 17 people living with diabetes in a diabetogenic, low-socio-economic urban area participated in face-to-face, semi-structured interviews. Interviews were audio-recorded, transcribed and analysed thematically. This paper adheres to the COREQ guidelines.

Findings: Four main themes were identified: 1. Diabetes fatalism: Inevitability and inertia; 2. Living with Inequity: Literacy and intersectionality; 3. Impersonal services: Intimidating and overwhelming; and, 4. Education in the community: Access and anecdotes.

Conclusions: This study has highlighted the need to develop local solutions for local problems. In this geographical area, solutions need to address generally lower health literacy, how the community would prefer to receive diabetes education and the issue of diabetes fatalism.

Relevance to clinical practice: Findings from this study have highlighted a need to re-examine how diabetes education is delivered in communities that are already experiencing multiple disadvantages. There are research and practice connotations for how fatalism is positioned for people at high risk of developing diabetes.

Keywords: aboriginal; diabetes; fatalism; health literacy; low socioeconomic; multicultural issues; qualitative study; type 2 diabetes.

MeSH terms

  • Adult
  • Aged
  • Diabetes Mellitus, Type 2 / complications
  • Diabetes Mellitus, Type 2 / psychology*
  • Female
  • Health Literacy
  • Health Status Disparities*
  • Humans
  • Male
  • Middle Aged
  • New South Wales
  • Poverty
  • Qualitative Research
  • Young Adult