Aims: To explore the concerns and experiences of parents of children scheduled to receive allogeneic haematopoietic stem cell transplantation.
Design: A qualitative secondary analysis of interview data from an intervention study.
Methods: A total of 28 parents (4 fathers and 24 mothers) were recruited from a children's hospital, which performs approximately one-third of all paediatric haematopoietic stem cell transplantation cases in Taiwan. Data were collected between September 2015-August 2018 by one researcher with face-to-face interviews, which were tape-recorded and transcribed verbatim. The data were analysed using inductive content analysis to extract the main themes.
Results: Five themes describing parental concerns prior to paediatric haematopoietic stem cell transplantation were identified: the child became their first priority, seeking solutions, an interweaving of hope and uncertainty, grateful for the chance of a cure and the long road to recovery.
Conclusion: Understanding the concerns and experiences of our participants as they navigated the pre-transplantation period could reduce parents' uncertainty and improve the care of their child.
Impact: These experiences provide information that could be used by healthcare professionals to develop support interventions and strategies tailored to the individual needs of each parent, which could prepare parents for their child's haematopoietic stem cell transplantation.
目的: 探讨计划接受异基因造血干细胞移植的患儿家长的顾虑与经历。 设计: 对介入治疗研究中的访谈数据进行定性的二次分析。 方法: 从某儿童医院招募28位家长(4位父亲,24位母亲),约占台湾儿童造血干细胞移植病例的1/3。收集于2015年9月至2018年8月期间的数据,由一名研究人员进行面对面访谈,录音并完成文字转录。采用归纳内容分析法对数据进行分析以摘录主旨内容。 结果: 确定了儿童造血干细胞移植前家长关心的五个主题:围着孩子的病情转,寻求解决办法,希望与不确定感的交替,感恩获得治愈的机会以及漫长的康复之路。 结论: 了解受试者在移植前的顾虑和经历,可以减少家长的不确定感,改进对孩子的照顾。 影响: 这些经历提供的信息可供医疗专业人员用于制定针对每个父母个人需求的支持性介入治疗和策略,帮助父母做好为孩子移植造血干细胞的准备。.
Keywords: children; haematopoietic stem cell transplantation; nursing; parent; qualitative study.
© 2020 John Wiley & Sons Ltd.