Promoting Parent Partnership in Developmentally Supportive Care for Infants in the Pediatric Cardiac Intensive Care Unit

Adv Neonatal Care. 2020 Apr;20(2):161-170. doi: 10.1097/ANC.0000000000000679.

Abstract

Background: Limited opportunities for parents to care for their critically ill infant after cardiac surgery can lead to parental unpreparedness and distress.

Purpose: This project aimed to create and test a bedside visual tool to increase parent partnership in developmentally supportive infant care after cardiac surgery.

Methods: The Care Partnership Pyramid was created by a multidisciplinary team and incorporated feedback from nurses and parents. Three Plan-Do-Study-Act (PDSA) cycles tested its impact on parent partnership in care. Information about developmentally supportive care provided by parents during each 12-hour shift was extracted from nursing documentation. A staff survey evaluated perceptions of the tool and informed modifications.

Results: Changes in parent partnership during PDSA 1 did not reach statistical significance. Staff perceived that the tool was generally useful for the patient/family but was sometimes overlooked, prompting its inclusion in the daily goals checklist. For PDSA 2 and 3, parents were more often observed participating in rounds, asking appropriate questions, providing environmental comfort, assisting with the daily care routine, and changing diapers.

Implications for practice: Use of a bedside visual tool may lead to increased parent partnership in care for infants after cardiac surgery.

Implications for research: Future projects are needed to examine the impact of bedside care partnership interventions on parent preparedness, family well-being, and infant outcomes.

MeSH terms

  • Adult
  • Audiovisual Aids*
  • Caregivers / education*
  • Female
  • Heart Defects, Congenital / nursing*
  • Heart Defects, Congenital / surgery*
  • Humans
  • Infant
  • Infant Care / methods*
  • Infant, Newborn
  • Intensive Care Units, Pediatric
  • Intensive Care, Neonatal / methods*
  • Male
  • Mid-Atlantic Region
  • Parents / education*
  • Patient Care Team